Donor Testing

We had our donor come for testing in July. We were excited about the tests getting done, but still reserved about it. We ran into a few obsticles. First a 24 hour urine test and a 3 hour glucose test were not done prior to arrival as it was supposed to be. It seems that this might have been an important piece of information prior to spending nearly $100K on testing.

Then to my surprise, our donor was told during the "whole day visit" that he needed a cardio test/scan of some sort. Instead he went back to LA and now it is complicated! First, he had to go to his regular doctor to get a referral for a cardiologist. The cardiologist has to order the test. (The hospital won't take Vanerbilts orders for it.) All of this because someone failed to mention that he might want to call the donor coordinator to set it up immediately. They have been faboulous about doing these things in a timely manner. All of which is costing us (via insurance) money.

Although our donor says he'll still get the test done when his schedule allows, he did offer us a psychic healer as an option. We do believe in miracles, prayer and devine intervention, but "healing" is not something we are willing to accept. So here we wait.....

We do have two other potential donors. However, it is a husband and wife. The wife is pregnant and expecting to be on bed rest in the next few weeks. So the question comes, do we wait or move on? How do you decide? And what about all the money already spent? Ugh!

On the positive note, Sean got told the other day that she "can't believe he's really that sick" because he is still so active. I am blessed that he hasn't given up and he tries to lead a normal life. We tell the kids he's sick sometimes if he's dragging, but for the most part he trucks right along without notice to his pain. This is the way we want it. (They do know that he needs a transplant, but we are trying to keep the details of it quiet so their school doesn't suffer.)