Saturday, August 29, 2009

Next Visit

We visited the surgeon on Tues. The decision has been made to remove both kidneys as the function has fallen to 14 GFR-a 5 point drop in two months! Frankly the appointment was quite an awakening of sorts. It was difficult to watch my husband nearly jump off the table in pain when the doctor was feeling the kidneys (left in particular).

We are happy about it in hopes that there will be less trouble with infection after donation.

We've gotten the information for the fund raising and passed it along to our bowling alley who is helping during Saturday leagues in which our kids bowl. Today they raised $156 on pocket change! We love the Pinnacle!

We go on Sept. 28th to meet the urologist who will do the kidney removal. We hope to have the donors dates so we can schedule these.

Oops-we think he's already scheduled for the removal on October 26th! We looked at the packet they sent and there is a date on there for Oct. 26th. Sean is calling tomorrow to confirm this with our coordinator. I will post when we find out definately. This date works IF our donor is willing to spend the new year in the hospital. If not, we can push it back to the first week in Nov. Since we will have to travel 3-4 times a week to Vanderbilt for dialysis it will make a difference.

2 comments:

  1. Hey Guys, my name is Daniel and I work for the PKD Foundation. I just wanted to write and say thank you for being an inspiration to all those in and around the PKD community. We at the Foundation are fully committed to finding a cure, but also to serve as a resource to everyone currently affected by the disease. Feel welcome to use the PKDcure.org Web site as a first stop for any questions/concerns/suggestions. You can also contact me personally at danielm@pkdcure.org. Thanks again and keep up the good fight!

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  2. Thank you! Will probably be visiting the site soon.

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