Well we have a transplant date of Dec. 29, 2009! Wow-this is really happening. Our friend and my husband will need to go for pre-op work on the 22nd. So I guess we'll have to treat our donor VERY well while he's here for the week. Actually, we haven't talked to him to see if he'll be staying or going to FL to visit family. He is certainly welcome here anytime, but don't know his plans yet. He may not either. This has all come about since Friday afternoon.
We won't get the date for removal until our appointment on Sept. 28th-my son's birthday which sucks a bit. We are told though that it might be as soon as a week or two after that appointment. I hate to say it, but that is too soon! We thought it was going to be 6-8 wks prior to the donation. So I don't know how early Oct. is going to work. Three trips to Nashville a week for dialysis makes a difference in how soon we'd like the removal to happen. We will push for later in Oct. or early Nov. for that reason alone. It's also a bit stressful to think of the lack of income for an extra month. I guess a wing and a prayer might be the motto for this time.
It really is all about me, isn't it????
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So I have debated and debated and debated and debated and even debated some
more about whether to continue this blog or not... I even started this post
on ...
12 years ago
We are thrilled everything is starting to work out for Sean. We both know how scary all of this is to be doing at once though.
ReplyDeleteI am going to post this tonight, but we saw surgeon today and he said that this is the most swollen up post-surgery time. It is a little over 4 weeks right now. He said no way would he do surgery now to do the catheter because everything is scar tissue at this point- swollen and stuck together. There would be more risks. So...my point is that giving some extra time to heal before transplant is not a bad thing. I would ask about that. Being on dialysis longer is not ideal I know.
Thanks-I will read yours later-still sitting in workout clothes and need to leave in 26 minutes-haha.
ReplyDeleteIt's getting a little scary at this point, but honestly once it "sinks in" we do just fine with it.
The holidays this year will be slim and yet celebrated! We haven't talked to the kids yet, but will soon.
Aside from the bags under his eyes, Bruce looks good! Call if you need to talk.