Friday, October 16, 2009

Bump in the Road

I guess without a bump in the road you can't enjoy the scenary!

Today, we got some information that took us totally by surprise. With so many doctors managing your care there is bound to be some issues. However, removing the NOT painful kidney-really?!

Sean and I were prepared for both to be removed and have accepted that only one might be. However, for 15 months, the LEFT kidney was to be removed based on that is the one causing the pain. So today when the doctor responded to an email and stated that the RIGHT one will be removed.....we were shocked to say the least. Since we can't get anyone on the phone, we drafted a letter and sent it to ALL of our doctors so all are on the same page and might work to make a decision. After all, the surgery is in 3 weeks!

Hopefully, they get some quick answers to us. This is not the time to be changing things. Of course, better to know now than after they removed the right one (the wrong one in my opinion). Either way....don't feel like waiting for answers. We have little time to switch doctors and get things under way, but it is under consideration at this point.
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4 comments:

  1. JenniferOctober 17, 2009 at 10:16 PM

    wow interesting.. yea, good idea.. want to make sure the correct one is removed! neil's left is larger than his right too! but he said still doesn't need to come out.. said he has room on the lower right for the new one!

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  2. HoeflingOctober 18, 2009 at 1:54 PM

    It is good that they don't need to come out! I hope things keep moving forward and work out with your potential donor. I keep reading to see new information.

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  3. Hoefling-amyOctober 19, 2009 at 9:01 PM

    I hope you got some answers today. Bottom line is you have to feel confident in surgeon and stand up for what you want.

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  4. HoeflingOctober 19, 2009 at 10:10 PM

    Well things got unbelievably worse! We now have NO surgeries scheduled. Two new doctors are in the works and so on.....

    To top it all off, it's Sean's birthday and it was quite a crappy one!

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